Module 1: Introduction to the interaction with the parents of newborns with congenital disabilities and premature babies
The purpose of this module is to offer support in dealing with emotions and problems to parents of children with congenital disabilities or born prematurely, in the first days after learning about the diagnosis or while waiting for it.
This module will help the reader to understand typical development, as well as various reflexes, month by month for a child aged 0-3. Additionally, we also look at the atypical development month by month.
This module provides information about the various risk factors that may lead to the disability of a newborn. It also puts emphasis on the correct and the incorrect terms used to address persons with particular functional limitations. In addition the Module contains links to useful resources such as ICF, national programs for social support of families and their newborns with disabilities.
This module provides overall information about several groups of disabilities/ disorders and their impact on the physical, cognitive and psychological development of the individual.
This module provides information about genetic counselling and the process of advising children and their families affected by or at risk of genetic and chromosomal disorders.
This module contains 2 different main topics. The first one is the early intervention support and the second is the prevention of child abandonment.
The purpose of this module is to understand the importance of communication between the medical staff and the parents of the newborns with congenital disabilities and/or prematurely born. It contains the detailed attributes of an efficient communication with the family, the perspective and expectations of the parents in communicating with the medical staff, coping strategies which are the “go to” for parents in these situations, the challenges the medical staff has to face and also the specifics of communication when it comes to neonatal intensive care unit (NICU).
This module provides information about the involvement of different members of staff in the provision of counselling depending upon their role within the multidisciplinary team, and the skills, knowledge, experience and qualifications held and used by individual members of the team. These also include professionals from social services.
Compassion fatigue is a syndrome that carers may develop when they internalize pain or anguish related to other people in their professional environment.
This module introduces mentoring as a tool to support professionals in their communication and interaction with families of premature babies and children with congenital disabilities.